In 2016, focus on Myla !
Myla is a young girl from Douarnenez (29) born in 2013 with an orphan disease, macrocephaly-capillary malformation (M-CM).
M-CM syndrome is a complex disease that manifests itself by an excessive and polymalformative growth of the brain, joints, skin and blood vessels.
As the brain is affected, Myla has an overall developmental delay.
For this edition, 442 bikers met on 22 May 2016 !
3 bands came to the event, Folls of Death Floor, The Past Travellers and The Flaming Zeros.
The profit of this day allowed Myla to achieve her dream of riding a bike adapted to her disability.
The purchase of the tricycle cost 2100 €, 600€ were covered by the social security. The association "Sourire de Mômes" financed the rest, 1500 €, thanks to the great participation of all the bikers.
A few days later, the Sourire de mômes association handed over a cheque for 500 € to the M-CM France association which fights against this disease.